Gift of life for schoolboy after Cystic Fibrosis drug boss plea

A CYSTIC fibrosis sufferer aged nine who wrote to the boss of a drugs giant pleading with him to strike a deal with the NHS has finally taken his first Orkambi pill. Tristan Scott-Binns asked Dr Jeff Leiden, boss of US pharmaceutical firm Vertex, for their life-saving drugs to be made available for free.

He revealed in the letter how he lost his uncle Adam, 25, in 1999 to CF. Later his father Andrew hanged himself after suffering from depression, leaving him to be raised by his grandparents John Binns, 71, and Frances, 69.  Dr Leiden was so moved he wrote back, vowing he “won’t rest” until he has signed the NHS deal.  Just weeks ago our CF campaign secured victory when Vertex agreed a deal for its current drugs Orkambi and Symkevi. 

Yesterday...
source: Express

2019-12-09 02:29
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